More than 300,000 people have signed-up to join the fight against Alzheimer’ disease. People from around the globe join the Alzheimer’s Prevention Registry to learn the latest in research developments and scientific advancements, and have the opportunity participate in studies aimed at preventing the disease.
Established by Banner Alzheimer’s Institute (BAI), in collaboration with partner organizations and leading scientists, the registry works to accelerate prevention research by establishing an online community of healthy individuals who are committed to fighting the disease. The platform also shares the latest developments in Alzheimer’s prevention research to those registered and connects those who may be interested in participating in studies with scientists in their community.
“Will one of the promising treatments to prevent Alzheimer’s symptoms actually work? With 300,000 wonderful volunteers engaged in the fight against Alzheimer’s, we have an unprecedented chance to find out,” said Eric Reiman, MD, BAI Executive Director.
Nearly 80 percent of studies brought to communities fail to meet required recruitment goals because of varying factors. “This is why it’s incredibly important to build a large, diverse community to support research,” said Reiman. The creation of the Alzheimer’s Prevention Initiative in 2011, which includes the registry, brought a new era in prevention research.
“The registry is playing a crucial role to help overcome recruitment barriers to advance prevention research,” said Jessica Langbaum, Ph.D., Alzheimer’s Prevention Registry director. “With 300,000 people dedicated to creating a future without Alzheimer’s, we’re able to fill more studies faster.”
The registry also notifies members about research opportunities taking place in their community and how to participate if they or someone they know may be interested. Anyone 18 or older with an interest in the fight against Alzheimer’s can join the registry.
Since the launch of the Alzheimer’s Prevention Registry, 60 studies have seen support in their recruitment efforts. Currently 29 studies are actively recruiting, and more volunteers are needed for surveys, studies and trials.
Alzheimer’s remains the only disease among the top 10 causes of death that has no cure or treatment, the registry is urgently pushing to accelerate the pace of much-needed research by recruiting members in the United States and internationally. Nearly 6 million Americans are living with Alzheimer’s, a debilitating and incurable disease. Without the discovery of successful prevention therapies, the number of U.S. cases is projected to nearly triple by 2050.
For more information, or to sign up, visit the Registry at www.endALZnow.org.
